The roller-coaster ride of an 9-year-old boy's brain cancer: the parents' perspective
Monday, May 21, 2012
Good-night, sweet prince.
Kol passed away quietly around 9:10pm tonight, in our van, on our way home to Outlook, surrounded by his loving family. We are now home in Outlook, with our families either already here or on their way. Thank you all so much for your continued prayers and support. We thank God that Kol is free from pain and suffering. And we thank God for his promises to comfort and sustain us through the trials of life. Amen.
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I am so very sorry for the loss that your family has suffered. Kol is a superhero for fighting cancer for so long and so hard. May your family find comfort in one another at this most difficult time.
ReplyDeleteMay the Lord keep you and shine His face upon you! I pray deepest sympathy for your entire family. I praise the Lord how deeply Kol loves Jesus and is now gone on to be with Him! I pray Kol continue to preach from Heaven! Warm hugs and condolences
DeleteNichole Niesman
God bless!
We continue to lift you up in our prayers tonite...
ReplyDeleteCandra & Riley Sexton
Words can not express our deep sorrow for you both and the girls.We will pray for your strength tonight and for the coming days ahead.
ReplyDeleteKol , you are such a brave superhero!!!
May you touch the face of Jesus now as he holds you close in his arms,your pain is gone forever!
The Clark Family
Rest in peace Kol,- pain free....finally experiencing what a REAL super hero is like. Thinking and praying all of you will experience peace which passes all understanding.
ReplyDeleteWe are so sorry you guys. Kol's a brave boy and we hope that you are able to find some peace. Your family present with you at home tonight as well as all of your extended relatives love you.
ReplyDeleteAaron, Angela, and kids
Emma just got up again and asked me to check Kol's sight one more time. We have been unable to sleep and have been holding you all in prayer. Blessed be his memory. God bless you, God loves you.
ReplyDeleteWords are not enough now. Our thoughts go to you all.
ReplyDeleteRest in peace, Kolbjorn.
God bless.
love and prayers to your family.
ReplyDeleteWe love you Kol.
ReplyDeleteThanks for being a superhero!
We hope you are having the time of your life with Jesus right now buddy.
Always in our thoughts and prayers... forever and ever.
-LCBI
Rest, Sweet Kol, Rest......
ReplyDeleteYour light will shine in the hearts of your beloved Family and all those who love you until we are together again.....
We Love You Kol......
We Love You Kirk, Kristen, Julianna, Mari, Birgitte, Annika
we are so sorry for your lost, god bless your family, our prayers are with you,, pat spencer and family
ReplyDeleteSo sorry for your loss. My heart breaks for you.
ReplyDeleteYour family is in my thoughts and prayers.
<3 Kendra Hellings
We are so sorry for your loss. We will be lifting up your family in prayer through this difficult time.
ReplyDeleteBrian and Val Tysdal
This amazing lil man brought so much light into a dark reality that so many of us face, will face or have lost others to this evil darkness called cancer......... he was who he was with the love of his parents and family and we were lucky enough to have touched his life!!!!!!there is some old saying about it takes 2 to make a child and a community to help love and protect............our community is mourning this too soon loss of this lil man!!!!
ReplyDelete<3
ReplyDeleteBryne (Sund FHS)
My sincere sympathy to you, Kirk and Kristen. It is 4:a.m. here and I woke up and had an urge to read your blog. We have been praying here at the school and church and will continue to pray for you and your family. Kol has been in my heart from the beginning and although it's terribly rough to lose a child, we can rejoice knowing that he is in the arms of Jesus, pain-free, and oh, so happy. He is a super-hero now without doubt. It is a blessing to know that he is alive and well, and his family and friends will be united again with him for all eternity. What a glorious hope!
ReplyDeleteDavid and I are keeping all of you in our prayers. We know this is a difficult time, we also know you are not alone - the Lord is with you, and if anyone knows the pain of a child dying, it is our dear Heavenly Father. It is good to know Kol is with Him now, pain free, healthy, happy, in the arms of Jesus - and yes, Kol is a super-hero for sure. Our love and prayers will be with you through the coming days and weeks. With love and prayers, Stephanie and David Spindler
ReplyDeleteSuch a brave fight surrounded by such a loving family! Continued prayers that you may all find peace, especially now. Darren, Lianne, Nyah, and Ella
ReplyDeleteOur hearts are with you. I can only imagine the party when that brave little man came thru the gate into Jesus' waiting arms. Praying for God's supernatural comfort and strength for each of you now and ahead. Love M and D and all
ReplyDeleteThough I did not have the honor of meeting this amazing little man. I know of him through the Griffiths.... He will be missed and I now pray that you are left with loving memories of him.... He is at peace now...
ReplyDeleteI am so sorry. He was surrounded by so much love. You are such a great family and I keep you in my prayers. Kol had been through so much and was so strong. He always kept that twinkle in his eyes. Judy
ReplyDeleteToday our family will gather for the funeral service for our beloved Howard. Mourning the loss of a 76 year old husband, father and grandpa cannot compare with your loss of nine year old Kol. We have a grandson that age and our hearts ache as we think of what you and your family are going through, and have gone through with the ravages of cancer. "God is our refuge and strength" Love and prayers from the Howard Johnson family at Torquay and the Milford Erickson family from Frontier. What a blessing to have them all with us today.
ReplyDeleteOh Kirk, Kristen, my heart is crushed for you and the depth of your pain without your little hero next to you. He was a gentle yet strong warrior and gave all of us so much hope and inspiration in ways we cannot express. Heaven got another angel back last night. I am positive he heard the words, well done good and faithful servant. We will be praying without ceasing for you all in your grief. Much love to you and your family. Love, Joan
ReplyDeleteso sorry to hear of Kol's passing. Even though i never had the chance to meet him, your blog brought him closer, know that my thoughts and prayers are with you all, Kirk and Kristen, and that you are comforted by the thought that his pain is gone and he's in the arms of Jesus. God bless you all.
ReplyDeleteWe have no words, but may you find some strength in God's words: “Do not fear, for I have redeemed you;
ReplyDeleteI have summoned you by name; you are mine.
2 When you pass through the waters,
I will be with you;
and when you pass through the rivers,
they will not sweep over you.
When you walk through the fire,
you will not be burned;
the flames will not set you ablaze.
3 For I am the Lord your God,
the Holy One of Israel, your Savior Isaiah 43:1-3a
May God's mercy and grace sustain you in these very dark moments! Love Paul and Kim
Our thoughts and prayers are with your family. Kol was such a trooper over the past two years. He, and your family were a testament to our Faith. Lean on God during this time and know that you are surrounded by friends and family both near and far who are praying for you. May the peace of Christ be with you all,
ReplyDeleteRyan and Kate Sorestad
We are sorry for your family's loss. Kol was a real super hero and the bravest person I know. May you feel peace in knowing he is no longer in pain and may fond memories bring you comfort in the following days, months and years ahead. Your family will continue to be in our thoughts and prayers.
ReplyDelete-Ron, Sharon, Nicole and Trevor Tomecek
A superhero in heaven!
ReplyDeleteI am deeply sorry for your loss. Thank you for sharing your courageous journey. Continued prayers, hope and encouragement.
Much Love,
The Gallagher's
My heartfelt condolences. I only knew your sweet son through your blog and my life was still touched by your little 'superhero'. May he rest in peace. May the Lord comfort your family. My prayers are being said for all of you.
ReplyDeleteShelley in SK
I am so very sorry for your loss. Know that my heart and prayers are with you all!
ReplyDeleteOur thoughts and prayers are with you at this incredibly difficult time. Kol was a true super hero, what he faced in his short years, not many can even comprehend. The suffering is over, May he rest in peace... The Murphy's
ReplyDeleteOur hearts grieve for you and your extended family. God's peace and comfort.
ReplyDeletethe Birketts
May he rest in peace. And may God's promise to hold us in the palm of His hand carry you through the hours and days ahead. Your girls and you are in our continued prayers. Bea, Cliff and girls
ReplyDeleteWe are so sorry for the loss of your sweet little boy! We cannot imagine the grief and pain you are going through. You are an amazing and loving family and thank-you for sharing your journey with us. We are praying for all of you, Kirk, Kristen, Julianna, Mari, Brigitte and Annika. Kol, you were and are a hero, for all you had to go through these past few years and for always being enthusiastic and smiling in church!
ReplyDelete"The Lord is near to the brokenhearted and saves those who are crushed in spirit." Psalm 34:18
Love, Conny, Rick and family
Much love to your family our prayers will continue for you.
ReplyDeleteJenny, Mike Aaron and Rebecca
There are just no words to express our sympathy. Our hearts and prayers are with you.
ReplyDeleteColin, Sharon, Carter and Meredith
Our hearts ache for you . . . praying that God will comfort you as only He can.
ReplyDeleteRuth and Arlin
You and your family are in our hearts and prayers. Blessings on you.
ReplyDeleteDennis & Joan
Our thoughts and prayers are with you and your family. Jake and Jenny boot and family.
ReplyDeletePraying. We love you all and will miss Kol so much.
ReplyDeleteA friend of mine asked for prayer for Kol last night. I read your blog and became overwhelmed with the beautiful story that you have allowed God to write in the midst of your intense pain and suffering over these past few years. And I wake up this morning to hear that he is in Glory. I know this journey has been much longer, much more painful, much more exasperating, much more stretching than the 12 hours that I knew about it. Know that this little man (the superhero!) and your family have spoken very strongly about the God whom you serve! That is cool. It gives hope and it helps the rest of us turn to this God that walked you through your darkness. Thanks for pointing to HIM throughout this journey and giving HIM the glory. Tears roll down my face as I write this, and I have never met Kol or his wonderful family. This is the power of how you have allowed God to use you through this trial. May you continue to allow God to write your story as you grieve the loss of Kol and enter into a whole new and challenging realm of this journey. May your faith be unswerving!
ReplyDeleteLove,
A sister in the Lord
As I sit and read through the blog, I cannot possibly find words that accurately express my feelings. I wish the words would come as easily as the tears, but that doesn't seem to be happening. Please know that your family is and will be for some time in our thoughts and prayers. Since I met you I have had nothing but admiration for your family in the way you handled such a trying and difficult situation.
ReplyDeleteAs a parent I always looked at the fight you were constantly battling and had the utmost respect for you and were so marvelled at the way you were able to continue.
As someone living with a brain tumor, I found great inspiration from Kol. I found it amazing on how he was able to pull positivity from such a difficult situation. He was more than a Super Hero in my eyes. Being privledged enough to have spent some time around Kol has made a big difference in my life and will help me for the rest of my days. There are many people who could have learned so much from such an amazing boy. This is a credit to your whole family as he never would have learned this without an amazing support team.
I pray and hope that you all will at some point take comfort in the fact that you did all you could to help Kol. Unfortunately our God has a plan for each and every one of us that at times sees our friends and loved ones leave us earlier than we wish them to. I also pray and hope that you will somehow be able to find comfort and peace through this difficult time.
Brendon and Sarah Vick
We are praying for you all, your little Superhero is going to missed so much. He has made such an impact on so many people.
ReplyDeleteKristen, Kirk and Girls
ReplyDeleteMY thoughts are with you as you make the next step on this journey. I pray for peace and healing for all of you. I have marveled at your strength and caring through all you have been through--supporting Kol and being there for him as he fought as hard as he could. Let me know if I can help in any way. Jody Y
Kirk, Kristen and girls,
ReplyDeleteMay God's love ang peace carry you all as you continue your journey. You are in our thoughts and prayers.
I am so sorry for your loss and am keeping you all in my thoughts and prayers. I ask that the Lord wrap his loving arms around you and comfort you in this dark time. May Kol rest in peace.
ReplyDeleteShari Olsen (Nachai)
Kirk, Kristen and girls: So sorry for your loss. Thinking of you and praying for you and your families during this difficult time..
ReplyDeleteLily N.
Kirk, Kristen and girls: So sorry for your loss. Thinking of you and praying for you and your families during this difficult time..
ReplyDeleteLily N.
So sorry to hear of Kol's passing. Our hearts and prayers are with you. Sheena, Don, Levi, Keesha, Skyler and River Eliason
ReplyDeleteOur hearts are aching for you. May God carry you through this time. Praying for you and your families. God Bless.
ReplyDeleteRob,Janell,Emmitt,Jasmine and Eli
Dear Kristen, Kirk, Julianna, Mari, Birgitte, and Annika,
ReplyDeleteOur hearts are heavy today as we think of each of you. We have been so blessed that you have allowed us to share in your journey over the past two years.
You have shown such courage and vulnerability in sharing Kol's battle with us. You have demonstrated your faith in Jesus even in the darkest times. Kol certainly knew that he was well loved by you....that you would do anything..what a marvelous gift.
We pray that the Lord would give you His peace as you gather wonderful memories of Kol and celebrate his life - the life of a "Super Hero".
"Brothers and sisters, we do not want you to be uninformed about those who sleep in death, so that you do not grieve like the rest of mankind, who have no hope. 14 For we believe that Jesus died and rose again, and so we believe that God will bring with Jesus those who have fallen asleep in him." 1 Thessalonians 4:13-14
You are in our hearts and in our prayers.
Love, Jake, Joanne, Scott, Jeff and Jennifer
Praying for God's strength and comfort for all of you, we are so sad for your loss. What a gift Kol has been to so many and he was so blessed to have such an amazing family! Our prayers are with you and your families.
ReplyDeleteLynnae, Grant, Chelsa and Erik
My thoughts and prayers continue to be with you all.
ReplyDeleteKol will be remembered as the 'sweetest' superhero boy!
Love, hugs and God's Blessings and comfort to you all,
Heather Arnold
My dearest cousin , know that our love and sympathy is all yours as you go thru something this tragic.
ReplyDeleteLove Marie Brent and family
We are so sorry for the loss of your dear son Kol... Our prayers are with you and your entire family... Kol has taught us all through his faith and courage. We've all been allowed to be a small part in Kol's life and meet his extraordinary family.. God will be with you all...
ReplyDeleteBarry and Jane Johnson
What a beautiful way to put it and how wonderful for Kol to slip away, surrounded by his loving family. He is indeed free from pain now, and we continue to grieve with you in your pain.
ReplyDeleteBeth
My heart aches for you all.
ReplyDeleteKol was an amazing young man and it has been inspirational following your journey... sad, heart-wrenching, but inspirational.
We know that he is with Jesus now, which is sometimes the only comfort there is.
My prayer for you all is that God would uphold you in his mighty right hand and that He will give you the peace and even joy in the midst of this painful time.
My heart goes out to you with many prayers for strength.
God's blessings.
Wendy Karstad
It is the heartbreaking stories of young children like your sweet little prince, Kol, who spend their lives fighting the terrible battle of cancer, that have inspired me to run a marathon for children's cancer. My thoughts linger especially on your little boy, who never got the chance to live the life most of us get to, growing up in small-town Outlook. My heart goes out to your family and your little Kol will leave a lasting legacy in the lives of many. My run this upcoming weekend, will be for those strong, courageous children and their families going through the trial of cancer, and most certainly in memory of your precious little boy. My deepest condolences and God bless your family.
ReplyDelete-Kirsti Simonson
We also grieve the loss of your son, even though we did not know Kol, and we also rejoice with you in the knowledge that he is with Jesus and is pain free. Our hearts are heavy with sadness for you and your family, but know your solid trust and faith in our loving Father will get you through. So many of us have been blessed by reading your blog and we thank you for your heartfelt words during your journey. May God bless you all.
ReplyDeleteHelen Siemens
We are so saddened by your huge loss. Our thoughts and prayers go out to you and your family.
ReplyDelete-The Tiede Family
Words cannot express how saddened we are to hear of the loss of Kol. He definitely was the biggest super-hero that we know. May God carry you all as you continue on your path.
ReplyDeleteTroy, Coralee, Amanda & Lauren
We often wonder at times like this why couldn't Kol be given a miracle. A dear friend pointed out that maybe this was Kol's miracle, to be with his savior whom he loved so dearly. Your faith, Kol's faith and your journey has touched many lives.
ReplyDeleteMay the loving arms of our Lord wrap all of you tightly and give you His peace and strength.
Our love & prayers are with you all.
Murray & Judy Phillips
i am so sorry to hear this kol will be lovingly remebered for his wonderful smile and spirit my thoughts and prays are with you all in this time may god bless you all and Kol is know wathcing over you all in gods loving arms
ReplyDeleteI am so sorry for your loss.
ReplyDeleteKelly aka MJ aka MamaJo
may god help you and keep you strong
ReplyDeleteHi The Lord keep you in the palm of His hand during this sad time. I don't know you. I am related to Kristina (Derek's wife) by marriage. I saw this on their facebook post. Keep your face turned heavenward!
ReplyDeleteHeather Saip
from Vancouver
Kirk, Kristen, Julianna, Mari, Birgitte and Annika; we are so very sorry to hear about the loss of Kol. May the strength of your family and your faith continue to guide you through this time of sorrow.
ReplyDelete"Earth has no sorrow that Heaven cannot heal."
Our deepest condolences,
Sylvia and family
I write for my family, including my mother Eleanor Gilbertson, that our thoughts are with you, as they have been for two years now since we heard of Kol's problems. We are sad that he is slipped away, but be confident that he waits for you above.Deepest sympathies, Dawn and family
ReplyDeleteOur hearts are breaking for you, we are so sorry to hear of Kol's passing. God has a beautiful new angel at His side. A real superhero.
ReplyDeleteMichelle, Al, & Jason
Kirk and Kristen, Julianna, Mari, Birgitte, and Annika, we love you all very much. I think that Samuel put best into words what I haven't been able to verbalize with his simple heartfelt, "I miss Kol." As I type this, I wonder what grammar and spelling errors Kol would pick out. What an amazing little boy that we were privileged to have in our lives! Praying that Abba would comfort you now and in the days ahead.
ReplyDeleteLove,
Kristine and Derek
Our hearts ache at the loss of your precious child. We can only imagine the joy Kol is now experiencing in heaven. The Lord will be kept busy with Kol's many questions and insights. Leslie, Dale, Katelyn & Sarah
ReplyDeleteOur thoughts and prayers continue for you all as you lay Kol to rest. His journey has ended but yours goes on honouring him and his Lord. Peace be with you.
ReplyDeleteBryan and Janet
Together with your many friends and family we offer our prayers for comfort and peace that can only come from the Lord. We have no answers for the questions and heartache but only want to remind you of how much you are loved by everyone around you.
ReplyDeleteElna and Merlyn
Kol fought a good fight. Heaven Is For Real!
ReplyDeletePraying for peace for your family,
Marilyn Fehr
We are so sorry to hear about your dear son and brother. Your blog has been tear-envoking, encouraging, funny, and real - vulnerable - Thank you for sharing. Praying that you will rest and be comforted in God's loving hands.
ReplyDeleteRon and Dianne Engen & kiddos
JJ Heller - Your Hands http://www.youtube.com/watch?v=FlL8LayF0uw
I have unanswered prayers
I have trouble I wish wasn't there
And I have asked a thousand ways
That you would take my pain away
You would take my pain away
I am trying to understand
How to walk this weary land
Make straight the paths that crooked lie
Oh Lord, before these feet of mine
Oh Lord, before these feet of mine
When my world is shaking, heaven stands
When my heart is breaking
I never leave your hands
When you walked upon the earth
You healed the broken, lost and hurt
I know you hate to see me cry
One day you will set all things right
Yeah, one day you will set all things right
When my world is shaking, heaven stands
When my heart is breaking
I never leave your hands
Your hands that shaped the world
Are holding me
They hold me still
When my world is shaking, heaven stands
When my heart is breaking
I never leave your hands
We've never met (I did work on a committee with Obert on a church project), and I cannot help be moved by your story. My thoughts and prayers are with you all during this difficult time.
ReplyDeleteOur prayers are with you & yours.
ReplyDelete