Sunday, August 15, 2010

And then there were two...

Two radiation treatments left. It's hard to believe that we're so close to the end of this phase of treatment. We're not sure what we're going to do to celebrate after the last one (on Tuesday), but as long as Kol is feeling up to it, we'll find something fun to do.

It's just five of us this week - Julianna and Mari are both gone to Kinasao for Skills Camp, so we won't see them until Friday afternoon. We're thinking of heading up to the lake on Tuesday or Wednesday and stay at Mom and Dad's cabin for a bit, or we might just run up Friday afternoon to get the girls - either way, we'll at least get to say that we went to the lake this week.

Kol continues to be in good spirits and dealing well with the treatments. His blood counts on Wednesday were back up in the safe zone, so he was able to go to VBS on Thursday and Friday morning in Outlook - he had a blast, it was so good to see him up singing with the other kids at the closing gathering Friday.

The meeting with Birgitte's neurologist went well last week - as expected, there was nothing out of the ordinary in her MRI. The neurologist said that her personality changes could be a side-effect of her medication, but they might just be temporary while she's adjusting to it. There's another EEG scheduled for her later this month, which should give an indication as to whether the medication is helping.

So, a somewhat busy week coming up, but then things might actually have a chance to settle back into some sort of normal, at least for six weeks. Kol is supposed to get an MRI about a month after the end of radiation treatment - mostly to check on the swelling, etc. from the radiation - and then another MRI two months after that to get a better look at the tumor. Chemotherapy should start sometime around Kol's 8th birthday (September 27th).

Thanks again for all of your prayer and support, and thanks for all the positive feedback from the video post last week - we'll see about doing something like that again in the future, it was a lot of fun!


  1. What a GREAT video. Thanks for posting it Kirk, and thanks for the interview...Kohl! It was great to meet you through the internet.

    Hopefully these next 2 days will go fast and you will be able to move on to the next phase of treatment.

    We continue to pray for you!

  2. That was so exciting to see you at VBS last week having so much fun! Congratulations for getting thru this first phase of treatments. May this week go even better than expected!