We are at home. All seven of us are together, in our house, at the same time. And we get to stay here for more than just a day or two. We get to sleep in our own beds, eat our own food, clean up after ourselves, and do our own laundry. It's wonderful. It's ordinary. It is truly a gift. Even the arguing and tears as we deal with pent-up emotions are wonderful. I can breathe again.
We had a great few days at the lake. I wasn't sure I wanted to go, but we promised the girls we would be there to pick them up from camp. It turned out to be a much needed break. The girls did an awesome job in the musical they learned at skills camp and it was great getting to see friends from the lake again. Kol had a blast seeing his 'best friends' and all of the counselors from last year. We got to go tubing (my arms are still a bit stiff), and Mari even tried to water ski. I realized how hard it is for me to just sit and do nothing but be with the kids. I felt guilty just sitting - I kept thinking that I should go find something to do - like read one of the books we've been given, clean the kitchen, or write a blog post. It was a good lesson to learn.
Tomorrow Birgitte has a follow-up EEG, so some of us will be making another trip to Saskatoon for that, but then we have no more medical appointments scheduled until Kol's MRI on September 23rd. It will be nice to be able to spend a large chunk of time being normal. Normal is good.
Birgitte seems to be tolerating her medication well, but we have noticed several behavioural changes in the last few weeks that we're not happy about. It's hard to tell if they are due to all the changes, travelling, and upheaval throughout Kol's treatment, or if it is due to side-effects of her medication. I hope we can figure it out soon, though. I miss Birgitte.
I'm working on another blog post, which should be finished soon. I was hoping to get it done today - but I'm going to go spend time with the kids, so it won't be. It's also getting really long; I have so much to say. It's about Blessings.