Thursday, January 19, 2012

Slow and steady

It seems that every day, Kol is slightly more active and more alert. Today after we got back from Kol's treatment, he and Kirk built a Star Wars Lego ship. He was sitting at the table for quite a long time before he got tired. After a nap (I even napped, too) he woke up and asked Kirk if just the 2 of them could go somewhere. Kirk took Kol to Barnes and Noble (where else) and got a few books. By the time they got home, Kol was tired, his head was hurting again and he was grumpy with Annika for being too loud - but he was still in a good mood. He read his new Star Wars cookbook until he fell asleep. It was the best day yet. He did need pain medicine this evening, though, so I hope he didn't overdo it. He's moaning in his sleep now, in spite of just having had a dose of morphine.

We're glad we moved out of Hospitality House. It was nice there and we were well taken care of, but it was cramped and the walls were thin, so we were constantly trying to keep the kids quiet. I didn't realize how tense I was until we got to the hotel and felt myself start to relax and breathe again. Hospitality House was also close to a hospital so there were lots of sirens, and air. I haven't had an uninterrupted night's sleep since before we took Kol to the E.R. in Saskatoon, but there were fewer interruptions last night and I did get a nap today, so I'm finally not so exhausted.

Today has been good.

6 comments:

  1. Derek and KristineJanuary 20, 2012 at 6:35 AM

    Glad to hear that you are seeing improvements in Kol! This is so encouraging to hear! At what point will Kol have another scan to see if any change has/is occuring in the size of the tumors from the DMSO treatment?

    Praying for you continually!

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  2. Thanks for the update. We continue to pray for Kol and for the rest of the family, knowing that our Lord is a mighty God abounding with steadfast love and grace and that nothing can separate us from the love of God. If there is anything you need from us just ask. We are close by.
    Tony

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  3. Glad you are able to get some better sleep. I know how important that is. We keep praying. Love you guys.

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  4. Carma Hopkins HedlundJanuary 20, 2012 at 2:04 PM

    Kirk, Kristen & family. I have been away for awhile, my prayers have remained. It was when I talked to Dad (Doug Hopkins) that I heard that Kol's journey has taken you to Tulsa. My thoughts and prayers are with you. Know that I hold you close to my heart!

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  5. So glad to hear he had a good day today doing the things he likes to do. And so happy to hear you have a place to stay where you can feel more at home. We think of you guys constantly and our whole family is praying for Kol. Thanks for these updates.
    - Angela, Aaron and family

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  6. Hey Guys,

    Just wanted to let you know that we are praying for you all constantly and it sounds like our Father is hearing and answering in wonderful ways.

    We have been asking especially for comfort, rest and peace for your and Kirk. We know what you're are going through and you come to mind throughout our days so we continue to pray for you. are there any specific things we can pray for?

    Grace & Peace,
    Lance for The Vaughters

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