Well. Today certainly didn't go according to plan. Birgitte had a seizure on our way back to Outlook (to take part in the Relay for Life) - not a serious one, she's recovered fairly quickly, but it was enough to make us turn around and head back to the hospital. For a little while I had visions of trying to take care of two kids in the hospital, but thankfully everything checked out fine in the ER and she's now resting at Mom and Dad's place (Mom and Dad came back from the lake as soon as they heard) with Kristen - I'm back on the night shift with Kol.
For those who aren't aware, this is the second seizure Birgitte has had - her first one was back in February, shortly after Annika was born. She was referred to a neurologist, and was scheduled for an EEG scan on June 15 and a follow-up appointment with the neurologist a week afterwards - tonight the ER said they were going to send another referral to the neurologist, so it's possible that they might move us up in priority for the scan and/or appointment. In the meantime, we're going to have to make sure Birgitte gets plenty of sleep and try to manage stress better, as that may be what triggers the seizures - Kristen's sister Regan had similar seizures at around the same age, so we're using that experience as a guideline until we know more about Birgitte's situation.
So, that's how today ended up going. On the plus side, Kol continues to improve - there's a plan in place for weaning him off of the feeding tube, it looks like we're still on schedule for getting the CT tomorrow and probably removing the EVD, and he's been laughing out loud at jokes and movies, which raises my spirits as well as his. At the end of the day, even a day like today, I still have hope and faith that things will continue to improve. Surprising for a cynic like me to say that, but there it is.
Today is gone. Today was fun. Tomorrow is another one.
-- Dr. Seuss, "One Fish, Two Fish, Red Fish, Blue Fish"