Here's some more info about the tumor, as I understand it at the moment. This is subject to change, because there is a very good chance I missed something, or misunderstood what we were told. The tumor itself is a neuroblastoma sub-type of a PNET tumor. I have it written down somewhere what PNET stands for, but I forget now - I'll let you google it if you want to know more. I'll be doing that too, soon. This kind of tumor is rarely seen in the brain, and are usually in the lower area of the brain. Kol's was near the top. Tumors where Kol's is don't respond as well to treatment, although the neuroblastoma sub-type does tend to respond slightly better to treatment elsewhere in the body.
The cancer clinic belongs to a group of treatment centers called Children's Oncology Group (I think) that collects and shares data on different types of cancer and the different treatment protocols. Any center that belongs to this group - which appears to be most in North America - will recommend the same treatment.
I'm falling asleep, so I'll try to post more tomorrow - about the results from Birgitte's EEG and visit with the Neurologist.