Monday, June 7, 2010

Pathology results not good

The tumor appears to be a grade 4 neuroblastoma - grade 4 being the fastest growing, most aggressive. The one bright spot in this diagnosis is that neuroblastomas normally don't metastasize - that is, they don't spread to other parts of the body. We're going to be meeting with an oncologist in the next day or two - we don't know for sure what sort of treatments they are going to want to do, but radiation therapy is likely, and chemotherapy is a possibility. They probably won't start treatment for at least another week or so, to allow Kol to regain his strength and recover from the surgery. Dr. Vitali didn't want to give me numbers (in terms of percentages, etc.), he emphasized that each person reacts differently to these cancers, so at this point in time I have no idea what sort of prognosis is possible.

I guess it goes without saying that this is not what we were expecting, or at least not what we were hoping for. I'm still in a state of shock. Kristen is still in Outlook until later this afternoon - our "tire guy" should have the van back on it's feet (so to speak) before school is out, and then I believe she's coming straight up here. I haven't told Kol yet about this - I think I want to wait until Kristen is here, so that we can both be there to comfort him and answer his questions. For now, I'm just trying to hold myself together until I can find a safe time/place to let my guard down and start processing some of the emotions that I'm holding back.

Your prayers, more than ever, are coveted. Thanks for your love and support.


  1. Oh Kirk.....I am so you need Greg or Derek or me or someone to come and "be" with you right now? Jo

  2. Bo and Miena FriggstadJune 7, 2010 at 2:13 PM

    We are tempted to hop in the van and drive down to be with you, but we must stay committed to our work commitments. So, for now, know that you all are in our thoughts and prayers.

    Love & prayers,
    Bo & Miena

  3. I can't imagine as a parent to be told news as you were told. Our thoughts and prayers are with you and Kristen and as I have said before if there is anything we can do please let us know. Keeping this blog is a good way to keep all of us informed.
    Sadie and Lorne

  4. Wow.
    Thankfully the Spirit intercedes for us when we don't know what to say or how to pray.
    I will pray particularly for you and Kristen so that you are able to process this in whatever way(s) is/are most true to you. I will pray for God to be incredibly present in the conversations you have with Kol and the girls.

    Kristine (Akre) Thannhauser

  5. What to say? You mention that you don't know what sort of prognosis is possible. Take this as you may, but I like what Dr. Vitali has to say; everyone reacts differently to the cancers and the treatments. I'd encourage you to not to stress over any stats that you may hear.
    You've commented that you have felt the prayers of the people surrounding you, giving you peace. It's amazing isn't it? I know that may not ease the emotions raging through you right now, but that is ultimately what will sustain you through this whole ordeal. (speaking from experience)

    My grace is sufficient for you, for my power is made perfect in weakness - 2 cor 12:9


  6. We are praying for Kol and the rest of your family...
    Blesssings & prayers,
    Riley & Candra Sexton and kids

  7. We pray for him every night!!

  8. praying...
    kathryn, wally, mara, abbey and siri

  9. Prayers for Kol and for you and your family.

  10. Kirk, We are praying for all of you. Gina, Corey and Peter

  11. I ache with all of you. Many, many more prayers and love coming from this direction.
    Tracy Friggstad

  12. Our thoughts and prayers are with your family and Kol. God give you strength for the difficult times ahead. Let us know if there is anything we can do.
    Bea and Cliff and girls

  13. Our prayers for strength for all of you will continue. Give our love to Kol. If you need anything, please let us know. The Weitermans

  14. I am at a loss for words right now but just to let you know that we are thinking of you everyday.

    Rod, Lana & family

  15. I am also at a loss for words. God give you strength for all there is to process and to explain to Kol and his sisters. My thoughts and prayers are with you.

  16. Praying for you! May God give you His peace that passeth all human understanding.

    Ken and Marilyn Fehr

  17. Kirk, Kristen and family,
    Our thoughts and prayers continue to be with you.

    "In this world you will have trouble. But take heart! I have overcome the world."
    John 16:33

    Tammy,Paul, Hannah and Jacob Felix-Clarke

  18. We are praying for strength and healing.

    Bryce & Leanne McLean

  19. So sorry to hear the news guys. We are all thinking of you and you have hundreds of friends and family members who are praying for you and standing with you through whatever the future brings so hopefully you won't feel alone.
    Aaron, Angela, Kieran, Quinn, and Eden.

  20. So sorry to hear this incredibly sad news. Praying for Kol and your family.

  21. Kirk, Kristen, Julianna, Mari, Kol, Birgitte and Annika - A Truly Beautiful Family:
    As I sit here tonight I am torn between wanting to race right up to the hospital to see you all, and hug you, and be "present" with you....and yet I want to respect the time you need to process this as a please know that my heart longs to be with you all, and that at a moment's notice Greg or I would be there for or night.....
    My head and heart are full of scriptures right now, but I am led to share with you something from your Uncle Marvin......first he would remind you that "God never gives us more than we can carry" and then he would reassure you that together "we're going to make it"......he believed it because he lived it.....he would want you to believe it too.
    I hope this speaks to your hearts right now, and that God super-imposes a "stillness" within you to feel His Presence.
    Loving You All and Hoping to See You Soon,
    Your Cousin Joanne and Greg
    "For I know that as you pray for me and the Spirit of Jesus Christ helps me, this will lead to my deliverance" Philippians 1:19

  22. Your relatives in Great Falls, MT are praying for Kol and all of you.

    Curt, Maureen, Paige, Kyle, Jamie and Kendra Nelson

  23. Thinking of all of you during this challenging time, and hoping for the best...

    Sending healing and loving thoughts your way,

    Cousin Theresa T

  24. I join with so many others in offering prayers for your family and this situation.
    Han's God Mom Gail

  25. Kirk and Kristen and family,
    Along with so many others we add our prayers for strength for you and healing for Kol. God's peace to you.
    Love to you all from
    Lorne and Darlene

  26. Kirk and Kristin and family,

    We are praying for all of you at this difficult time knowing that Jesus is holding Kol in his loving arms. We are asking God to grant healing to Kol and strength and comfort to all of you.

    Troy, Coralee, Amanda and Lauren

  27. Kol, you are one tough boy! God's in control of you and has you in the palm of His hand, loving you more than you can imagine. He will not leave or forsake you. I know that you know that because you remind me of that in Sunday School! You are one great example for all of us there buddy! Have fun with your lego and watching those cool movies. Remember that we are all praying for you and your family. We sure look forward to seeing you! Love and hugs from Eliana, Leif, Alexander, Kirsti and Dave

  28. Jake & JoanneJune 7, 2010 at 11:26 PM

    Dear Kristen and Kirk...overwhelming news to take in on your little Kol tonight. We do not forget you..and pray that the Lord will provide you strength for tomorrow. Love, Jake & Joanne

  29. I'm here via the Sonlight board. Just read the backstory and am terribly grieved at what a blow you've been dealt. There really are no words. It sounds like you have a good deal of tangible support. Know, too, that prayers will be offered on your behalf from those of us at a distance. I will ask my own five boys to pray on Kol's behalf, too.

    Peace be with you,

  30. kirk and kristen and kol and sisters! we as a family are praying for each of you every day-we will keep on praying and trusting that God will hold each of you in His hands. much love, mark and darci and girls

  31. Our thoughts and prayers continue to be with you and the medical staff. If there is anything we can do to help, let us know.
    Tony and Betty

  32. Our thoughts and prayers are with you guys.

    Jackie,Al,Landon & Avery

  33. Many scriptures come to my mind right now and many have already been used and I know God's word is never far from you right now. We just want to add our voice to the many others as a way of encouraging you that as you walk through this valley you are not alone! One moment at a time and we will continue praying for each of you and for the healing hand of our Great Physician on Kol.
    Paul and Kim

  34. Hello Kirk and family,

    My thoughts and prayers are with your family during this time of struggle and despair. We trust that God's will is carried out and as Romans 8:28 says "And we know that in all things God works for the good of those who love him, who have been called according to His purpose". I can not imagine the range of emotions that as a father you must daily go through. My heart weeps to see Kol in this state. I pray that God will give you strentgh, wisdom and patience and comfort in over flowing abundance. The church in Elbow (Bethel Lutheran) has added you to the prayer chain.... there are some wonderful prayer warriors/angels at work on Kol's behalf. Please let us know if we can do anything to help. May we trust in God as Jeremiah 29:11 says "For I know the plans I have for you decalres the Lord, plans to prosper you and not to harm you, plans to give you hope and a future". God bless all of you.

    Rob Hundeby and family

  35. my prayers are with you guys. I hope everything works out and remember that God is with you and will continue to watch over Kol.
    Caley Voth

  36. I feel so blessed to have come to know your wonderful family. And especially my close friendship with Kol - my heart aches for him and for you all. You are ALWAYS in my thoughts and prayers. You are SO loved. I hope you can take some comfort in knowing that so many care deeply for you as you face such difficulty. I have found comfort in Psalm 91 -On Eagle's Wings, but then I am sure you know it well.. Love, Louise

  37. Kirk and Kristen,
    I can not imagine the situation that you are in. Thank you for sharing Kol's journey with us. In reading your blog and the comments, it is good that you know that you and your family are loved, thought of and prayed for by many people. I am at work, looking at a photo of a former student who survived a very similar diagnosis and is doing extremely well in high school - years later. The chorus of an old hymn is echoing in my mind as I look at her ---He has done marvelous things. I too will praise him with a new song.
    cousin Maria (Brett, Ella, Maeve)

  38. Bill and Carolyn KoopJune 8, 2010 at 3:46 PM

    I know it may seem easy to say, but Scripture tells us that the prayers of righteous people avails much. The best words you can hear from anyone may just be that they are praying for you. We are also in that group and may God get the glory for what he is about to do, whatever it may be.
    Bill & Carolyn Koop

  39. Thoughts and prayers are with you. I am so sorry that you have to go through this. Know that you are in my heart. Tell Kol, that there are so many people praying for him.

    Carma (Hopkins) Hedlund

  40. We are praying for Kol and the whole family. May you find strength, comfort and peace in the loving arms of our Savior.

    David, Cheryle & Joshua Zorn
    (friends of Greg and Ulla)

  41. Our thoughts and prayers are with you all.

    Rich & Tannis Kaminski

  42. Your family and Kol are in our prayers - and the prayers of many friends and family unknown to you. God will give you the strength, hope, wisdom, and courage to walk this journey.

    Roger, Tammy, and girls